Bio: Georgene’ Glass is the founder and Executive Director of Dreamsickle Kids Foundation, Inc, the first Sickle Cell Disease (SCD) organization in the state of Nevada.
Since 2018, the organization has led Sickle Cell support and advocacy in Nevada contributing to the state’s first Sickle Cell bill AB254 which has allowed for better access to medications specifically made for SCD and a state registry to obtain an accurate count of the number of patients in Nevada affected with SCD.
Georgene’ also serves as a Vice Chair of the Nevada Rare Disease Advisory Council created in 2019. As a mother of a child with SCD, Georgene’ has made increasing SCD awareness and support in the state of Nevada a personal mission. With SCD being one of the 7,000 Rare Diseases, in 2020 Dreamsickle Kids Foundation, expanded its support and efforts to those in the state that may suffer from any Rare Disease.
This year Georgene’ became an author, publishing The Tale of the Cell, a children’s book about the ups and downs of the disease starring her daughter with SCD Gia. The book gives an entertaining yet real view of how SCD affects people and ways they manage and still enjoy life. Georgene’ holds a B.S in Criminal Justice, is a Community Health Worker (CHW) with special CHW training from the Sickle Cell Disease Association of America which allows her to further advocate and support those with SCD in Nevada.
Target Populations: Children, School Aged-Children, Teens, Young Adult, Adults, Caregivers, Low Income, Chronically Ill, Rare Disease patients
Research/Focal Areas: Children’s Health, Family Health, Health Equity, Legislative Advocacy